To My Past Self – Here’s what you didn’t know on the day of your son’s diagnosis

This is a post I originally wrote for The Mighty, when they asked “If you could go back to the day you got a diagnosis what would you tell yourself?”


 

Today, the doctors will tell you that your baby boy is missing part of his DNA, and they do not know exactly how this will affect him.

I know you want to meet the news with dignity and grace, because this is not a diagnosis. This is your son, and you enthusiastically accept every part of him.

That is not entirely what will happen.

kiss boston

As you sit in front of the panel of experts, you will be commendably cool and calm, nodding at their carefully-worded responses as your stomach knots and your throat aches. They won’t see the ball of emotion that is rising slowly from within.

You will securely place your beautiful firstborn in his car seat, hop in the passenger side, and wait until your husband pulls onto the highway before, finally, the tears come. You will sob as a sadness takes over that you have no word for.

In the days, weeks and months ahead, that sadness will visit you. It will surround your worries and fears and blur your visions of the future with its salty tears. And the sadness will make you feel guilty, because you never want to feel this way about the baby you love so much.

I am writing you to say: Everything is OK.

The sadness that is hurting you — embrace it. You are not a bad person for dreading this challenge. This pain is nothing to be ashamed of or hide from. This journey can chew you up and spit you out, pummel you down and lift you up. You may laugh with abandon and cry with despair, sometimes at exactly the same time. I am not going to lie — this is going to be hard.

But…

It will also be the most joyful and rewarding experience of your life. You’ll feel gratitude for the smallest things. You will learn a new respect and acceptance for others. You will help spread awareness of rare disorders and craniofacial anomalies. Your community will come together in such unexpected ways to support your son’s journey.

Oh, and your son — what an amazing person he is. He will continually surprise and delight you with each of his successes. His personality will be wonderful and unique. He will melt hearts and break down barriers wherever he goes. And dear one, he is happy.
So here I sit, your future self, sending love to you always through this incredible journey and letting you know: Everything is OK.

Parenting How To; An aggressive toddler and his little sister

Last week the heavens saw fit to bless me with a little parenting challenge in the form of our toddler acting like an aggressive little devil. Picture him yanking his sisters hair while imitating her screams and then giggling like a mad man once he was detached from her locks. Then picture me filling with rage, staring wide eyed at my gorgeous son, wondering how he could be so mean and nasty…the evil giggle really makes you wonder, where am I going wrong as a parent????!!!

siblingsAll I want to do is scream at him “NOOOOOOOOOOO!!!!! Oh my gosh what is wrong with you can’t you see you are hurting her, YOUR SISTER WHO YOU ADORE! why are you laughing? You are a crazy evil human!”

Instead I try two approaches;

yell NO so loud I scare myself then, growl like some canine mother, and in some weird attempt to stop him laughing and make sure he realises this is not funny but serious and wrong, I put him in his room and close the door. He continues to giggle before banging on the door and beginning to cry, when I open it he smiles from ear to ear and runs out.

or

while trying to comfort Ruby, look into his eyes and explain that his behaviour hurts his sister and that he needs to be gentle. He meanwhile tries to dodge past my blocking arm to grab back at her hair. Giggling or screaming the whole time.

Neither approach was helping and the problem seemed to be escalating. My super amazing mum came around and shared some golden advice…”just ignore it”….well, thats the short version.

In that moment, when he was being aggressive, all he wanted was attention. There would have been a need he had that was not being met, whether he was tired or hungry or feeling wound-up or just in need of connection…so when other attempts to get my attention hadn’t worked (or weren’t working fast enough) he took action. The bigger RE-ACTION I gave him the more aggressive he became, and by far the worst response was when I myself became aggressive in language and in shutting him away. I do not believe this sort of behaviour from a toddler is a conscious effort to manipulate, he isn’t plotting to be evil and steal my attention, no…it is just an event that occurs and then an intuitive response to react.

So what, am I just meant to ignore this negative behaviour? Isn’t that just the same as condoning it? As a parent don’t I need to control my child, teach them wrong from right?

Here is what I learnt.

That moment will not be when I teach him wrong from right.

In that moment I need to stop the behaviour, but not give it energy, not fuel the fire.

Now when he acts aggressively I stop the behaviour, say firmly but calmly “No, pulling hair hurts and I won’t let you hurt your sister.” Then I walk away with Ruby far enough so he can not reach her but not out of sight. I console her without making a fuss and go about doing exactly what I was doing before the incident. All the while I keep an eye on how he is reacting. Sometimes he will follow and start grabbing, so I repeat “No” firmly and calmly, then move away with little reaction. There is no shaming or guilt, no evil eyes. I believe it is so important that we let our children feel every emotion, anger and frustration are not bad, but sometimes children deal with those emotions in unacceptable ways (ahem.. like hurting their sisters).

I am learning to accept that my toddlers behaviour, aggressive or otherwise, is just part of him finding his way in the world. Sometimes our initial reactions in a situation may seem like a guiding force, but they are not always the most appropriate or helpful. Teaching wrong from right doesn’t happen in one moment, it happens over a whole childhood. We do not learn how to deal with our anger in one moment, it takes a life time of guidance and self development. And we do not learn kindness and gentleness through a lecture our parents gave, but through the behaviour they mirror for us day after day after day after day.


It is also really important to remember that aggressive behaviour is usually caused by an unmet need. Sometimes this is inevitable, as parents we can not always cater to exactly what our children need in each moment. I wrote a post a while back about aware parenting, it has a few tools for helping meet the needs of our children…and hopefully reducing their frustration and anger. Time to Aware Parent your kiddies?

Waking at 4am for a text message tantrum

Okay here goes a confession. I had a tantrum this morning. Yes ME.

TeaI awoke from deep slumber to hear my son whimpering in the next room…it is still dark but I hear birds and I guess it is 4am. All good Dad will sort him. Whimpering continues and I look up to realise that Dad has gone for a surf, DAMN my memory! By this point our son is wandering the hallway, clearly awake. I stumble out of bed before he disturbs the baby, and I feel furious. It is the second morning in a row we are up before dawn, I am exhausted and totally over not having any ME time. I start feeling super angry at my husband for going surfing (even though it was planned). The rage is building and as my son starts whining about the stuff toddlers whine about, I know I am in bad territory.

I quickly grab my phone and shoot a completely horrible text message to my currently surfing hubby. I express every ridiculous thought in my head and press send.

Then I send one more which says “Thanks I feel better now :)”

An hour later he calls in a calm tone and I answer full of patience and love. He knows the text was a vent and he lovingly lets me have it. I did it because I knew he would accept my anger which needed to be expressed, I felt no guilt, and it helped me immensely in doing what needed to be done. The morning started at 4am, but it was a lovely morning.

Then I read this article and laughed; The Best Way to Teach Your Child Emotional Intelligence. Children, AND ADULTS, need a safe place to express raw feelings. There is so much value in accepting our emotions and expressing them till their end. It free’s us from the burden of negative thoughts circling our minds all day.

I feel so lucky to have a partner that is emotionally intelligent and accepting. With a little awareness we will be able to create that same safe place for our children, and that is a beautiful thing.